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Julie Ogden


My Personal Story
By: Julie Ogden, 38, Pineville, LA
Research Nurse and HIBM Patient
HIBM patient for since 1988

“I was 20 years old when I began feeling weak. Now, after almost 20 years, I am bound to a wheelchair. I am struggling to keep my fingers moving and to keep my neck holding my head up. I’m bound physically, yet my spirit never dies – I will keep fighting, raising awareness, raising funds and doing my part in this race.”

More to come…