March 16, 2008

Welcome to ARM's new website and new design campaign! ARM has undergone a new look to match the acceleration of research and the exciting time in ARM's history. We hope you like it! The website is under continuous development, so we encourage you to visit often for updates, future events and news. Please take your time here in learning more about ARM, its purpose and its patients.

The flags on top right corner of the screen represent the nations of people people affected by HIBM . You are our family and friends and because we share the same journey we are grateful to you for being a part of our story.

Read the History of ARM and how it all began.

Please join us for Telethon 2008.

Sunday, December 7th, 2008

12:00 - 5:00 PM

KSCI, Southern California Channel 18, Omid E Iran (OITN), and Persian Satellite TV.

Proceeds will benefit biomedical research towards accelerating the development of effective therapy for HIBM. To volunteer, please call (818) 789-1044. Thank you.

Thanks to all who came out and showed their support. Costume Party was a great success thanks to all who attended. View Photo Album - Click Here

GALA REVIEW AND ALBUM
Nancy Kram (President of Kram communications) writes: “When I attended the gala, “Touching Tomorrow - A Cure Within Reach”, it was impressive to see a ballroom filled with over 500 people. What I have experienced, along with the hope and dedication…is a movement towards a cure that is growing in depth and breadth. To say how impressed I am at the fine people they are is truly an understatement…ARM reminds me of “the mouse that roared” - a small organization with a big purpose…

To Read More About Gala and View Photo Album Click Here

Research Gives Hope Against Rare Muscle Disorder
The result of scientific study on a mouse model gives hope that N-Acetylmannosamine, a sugar-like molecule, may help HIBM patients. See the news release and original scientific article published on June 1, 2007 issue of JCI. The study used a mouse model produced by HIBM Research Group (HRG), an ARM funded laboratory.
For more information and published findings

Result of IVIg Clinical Trial
The result of the IVIg therapy, the first clinical therapeutic trial on HIBM, is now published. You may download the full text of the article at BMC Neurology. The study was made possible by patients referred from HIBM Research Group ( HRG), an ARM funded laboratory.